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The Leukemia/Bone Marrow Transplant Program of BC

For Patients & Families

Survivorship Program and Long Term Follow Up Clinic

From left to right: Dr. Gudapati, Colleen McLean, Dr. Kaila, Monica Dial, and Dr. White

 

The Leukemia/Bone Marrow Transplant of BC Survivorship Program

Stem cell/bone marrow transplantation can have long-lasting or late-onset effects on your body and as such you need to be monitored and examined regularly for signs of graft-versus-host disease (GVHD), immune system recovery, late complications and any disease recurrence.  We are delighted to offer you lifelong care through our newly expanded and comprehensive Survivorship Program and Long Term Follow Up Clinic (LTFU).

The Survivorship Program can offer you support, treatment and education post-transplant. Our Long Term Follow Up Clinic also serves to educate patients about post-transplant complications, late effects of transplantation, prevention and wellness. Your comprehensive survivorship follow-up care is provided by a team of physicians who specialize in the care of transplantation survivors. Our clinic focuses on identifying, preventing, and managing any long-term and late effects associated with transplantation. Your visit will involve assessment and management of late complications or issues you may be experiencing, and develop a plan to support your future health.

Your care at the Long Term Follow up Clinic is in compliment to your primary hematologist (transplant doctor). The Clinic physicians are in regular contact with your transplant doctor and we strive to schedule your visits to our clinic in coordinated manner with them. The Long Term Follow Up Clinic team members also work in partnership with you and your primary care practitioner (i.e. General Physician) to manage, treat and prevent medical problems. This often takes place through enhanced screening tailored to your specific needs. Visits to our clinic take place annually do not replace your ongoing regular follow up with your transplant doctor or your GP. Some patients out several years from their transplant, with minimal to no active graft vs. host disease, can be followed exclusively by the LTFU and their GP.

Frequently Asked Questions & Answers

Q. How can this program benefit me?

The knowledge gained from determining your current health status post transplant and reviewing your cancer treatment can help you understand your future health risks. It will also assist and educate you regarding your risks and how to prevent and manage them. We can also address current physical or social survivorship concerns you may be facing as a result of your treatment.


Q. What can I expect from my Survivorship Program Clinic appointments?

A thorough assessment and evaluation will be completed and you will be provided with information on the prevention of the late effects of your cancer and cancer treatment, recommendations and resources for dealing with long-term effects, as well as suggestions for healthy lifestyle behaviors. All required diagnostic/screening tests will be organized by our clinic and reviewed at your appointment. Copies of the treatment summary, and any recommendations made during the appointment are shared with your health care team, including your transplant doctor and primary care provider (i.e. GP). Your primary care provider can then incorporate this information into your overall medical plan.

Q. How do I contact the Survivorship Program?   

If you have a question specifically related to issues discussed .i.e. late effects of transplantation, that cannot be answered by your personal doctor or if you and your doctor have determined that consultation from the Survivorship Program is needed, we are here to help. Patients who have lost contact with the Leukemia/BMT Program of BC after their transplant are also encouraged to get in touch with us.  To reach us Monday through Friday during the hours of 0800 until 1600 call (604) 875-4111 ext. 64335 or email bmtsurvivorship@bccancer.bc.ca. For emergencies, please call 911 or go to your nearest emergency department.

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